AP NEWS
Related topics

Feel Good Friday: Brotherly Love

June 3, 2018 GMT

When a South Carolina family said their infant son was diagnosed with a rare and terminal neurological condition, his 9-year-old big brother decided to take the bad news and make lemonade. Literally.

Matt Emery and his wife Melissa said they were heartbroken to receive the news earlier this month that their now 6-month-old son, Dylan, has Krabbe disease, an incurable disorder that destroys the protective coating of nerve cells in the brain and has no cure.

When they traveled with their young son to see a specialist at the Children’s Hospital of Pittsburgh, Matt Emery told ABC News, the couple’s other son, Andrew, decided to help.

“While we were gone he wanted to do something to help raise money for Dylan and then he came up with a lemonade stand,” Matt Emery told ABC News. “He raised $5,860 in just two hours.”

“You wouldn’t think a lemonade stand could do that much in such a short amount of time,” Emery continued, “but with social media and different fundraisers that’s what he wanted to do and it happened so quickly.”

The family set up a Team Dylan Facebook page to post updates, progress, photos and events, including the lemonade stand fundraiser, and to help raise awareness about their son’s incurable disease.

“As his Daddy, I was very proud, he’s got a heart of gold, he’s such a good kid to set a fundraiser up at just 9 years old,” says Matt Emery. “It’s just impressive. I told him, ‘I didn’t care if you raised $5 or $500.’ I was extremely proud.”

Now the family is spending as much time with Dylan as possible and trying to keep him comfortable. A family friend also set up a GoFundMe page to help.