Lawmakers: Support Alzheimer’s Act

April 14, 2019 GMT

Editor: Alzheimer’s disease is the most expensive disease in America, costing an estimated $290 billion in 2019. It is the only leading cause of death without a way to prevent, cure or even slow its progression. In 2019, there are an estimated 280,000 Americans under the age of 65 living with Alzheimer’s disease, and 5.8 million affected nationwide. On April 2, my fellow advocates and I took our story to Washington, D.C. We spoke of the impact Alzheimer’s has on Pennsylvania and the nation with Sen. Pat Toomey, Sen. Bob Casey and Rep. Matt Cartwright. I shared my experience as an advocate, nurse, and former caregiver for my grandma until her passing. We asked our Senators and Rep. Cartwright to be our voice in Washington, D.C. In order to change the trajectory of this disease we need Congress to fund Alzheimer’s and dementia research at the National Institutes of Health and fund the CDC so that the BOLD Act can be implemented, increasing early detection. We need improved access to care planning and support all persons living with Alzheimer’s disease and related disorders, not only those aged 65 and older. Please thank Sen. Casey for introducing the Younger-Onset Alzheimer’s Act, and please ask Sen. Toomey and Rep. Cartwright to cosponsor this bill. Please ask Sen. Toomey, Sen. Casey and Rep. Cartwright to cosponsor the Improving HOPE for Alzheimer’s Act. Remind your Congressmen that funding both the BOLD Infrastructure for Alzheimer’s Act and Alzheimer’s and dementia research is crucial. Together we will #ENDALZ Kady Luchetti PLAINS TWP.